Definition of Fibromyalgia

Definition of Fibromyalgia

( Thank you Linda for sharing this....)
A history of widespread pain. The patient must be experiencing pain or achiness, steady or intermittent, for at least 3 months. At times, the pain must have been present:

A. On both sides of the body
B. Both above and below the waist
C. In the Mid-body-for example, in the neck, midchest, midback, or headache.
D. Pain on at least eleven of the eighteen tender points

Problem with the definition is that it is a research definition and excludes many people with the syndrome.

Basic dysfunctions can be generalized to be characterized by:

•             Disordered sleep
•             Hormonal deficiencies (not picked up on standard blood tests)
•             Nutritional deficiencies
•             Infections
•             Mitochondrial dysfunction

Associated Conditions:

•             Chronic Sinusitis
•             Multiple Chemical Sensitivity (MCS)
•             Sensitive to medications
•             Allergies
•             Sensitivity to temperature or barometric changes
•             Intolerant to alcohol
•             Hypoglycemia
•             Dizziness
•             Low blood pressure
•             Low grade fevers
•             Heart palpitations
•             Frequent infections
•             Irritable Bowel Syndrome
•             Vulvadynia
•             Headaches (migraine and tension)
•             Depression
•             Autoimmune diseases (lupus, RA)
•             Restless Leg Syndrome
•             Weight Gain
•             Increased thirst
•             Low body temp
•             Insulin resistance
•              Yeast overgrowth
•             Carpal tunnel syndrome
•             Painful or irregular menstrual periods
•             Extreme exhaustion
•             Sleep disturbances
•             Brian fog
•             Shortness of breath
•             Confusion with numbers, names, words etc.
•             Mood swings
•             Numbness or tingling

Interestiing to anyone who may need to claim xx

Don't miss..........................
Britain on Benefits
Monday 18th Channel 4
20:00
Might be interesting to sufferers needing to claim x

This post is not about Fibro but very important to all - please read and share x

I didn't know about 112 did you?
Thank you Rosina for sharing this info.....

A bit of useful advice - verified by the Dorset Police.
The number does work from a mobile.

It was the Saturday before New Year and it was about 1.00pm in the afternoon, and Lauren was driving to visit a friend, when an UNMARKED police car pulled up behind her and put its lights on. Lauren's parents have 4 children and have always told them never to pull over for an unmarked car on the side of the road, but rather wait until they get to a service station, etc.
So Lauren remembered her parents' advice, and telephoned 112 from her mobile phone.
This connected her to the police dispatcher she told the dispatcher that there was an unmarked car with a flashing blue light behind her and that she would not pull over right away but wait until she was in a service station or busy area.
The dispatcher checked to see if there was a police car where she was and there wasn't and he told her to keep driving, remain calm and that he had back-up already on the way.
Ten minutes later 4 police cars surrounded her and the unmarked car behind her.
One policeman went to her side and the others surrounded the car behind.
They pulled the guy from the car and tackled him to the ground........the man was a convicted rapist and wanted for other crimes.
I never knew that bit of advice, but especially for a woman alone in a car, you do not have to pull over for an UNMARKED car.
Apparently police have to respect your right to keep going to a 'safe' place.
You obviously need to make some signals that you acknowledge them I.e., put on your hazard lights) or call 112 like Lauren did.
Too bad the mobile phone companies don't give you this little bit of wonderful information.
So now it's your turn to let your friends know about 112 (112 is an emergency number on your mobile that takes you straight to the police because 999 does not work if you have no signal).
This is good information that I did not know!

Please pass on to all your friends, especially any females.

As far as I am aware, 112 uses a system called triangulation so they can also pinpoint exactly where you are phoning from.

READ IT THEN PASS IT ON DON'T JUST DELETE - IMPORTANT

Urgent Please Read

CALLING PEOPLE WITH FIBROMYALGIA WE NEED YOUR HELP TO COMPLETE THE LARGEST GENETIC STUDY OF FIBROMYLAGIA EVER!
The study can be completed at your local GP practice!
We need to reach our target of 2000 people taking part in this study and we are 60% of the way there!  With YOUR help we will have enough people in the study to allow scientists to tease apart the genetic factors contributing to the development of fibromyalgia.
We have spoken to many people with fibromyalgia and have heard their frustration at the poor treatment options available to those living with chronic pain.  The team working on this study includes scientists and doctors convinced that we will be able to devise better therapies only with improved understanding of the biology of pain.
Thank you to the 1200 of you who have already enrolled in the fibromyalgia study – your support and effort is invaluable. If you have already received a blood donation kit we should be grateful if you would kindly arrange this by the end of April 2013.  If you have received a blood donation kit but are unable to take part in the study, please return the kit to FREEPOST address: Admin Team, Department of Twin Research, St Thomas’ Hospital, FREEPOST LON7776, London, SE1 7YY (no stamp required)
If you have fibromyalgia and would like more information about the study, please call us on 0207 188 1928.  On registration you will be sent a questionnaire, a blood donation kit and instructions. Or you can register on line at http://www.dtrsurvey.co.uk/fibrogene
If you have registered but have not yet received a blood donation kit, please bear with us as we continue to send kits out – the response has been most impressive. We will post the kit to you as soon as we can.
Thank you once again.
Best wishes
Dr Frances Williams
Senior Lecturer and Hon Consultant Rheumatologist
King’s College London
St Thomas’ Hospital
London SE1 7EH